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  1. List of Rare Diseases | A-Z Database | NORD

    What Is the NORD ® Rare Disease Database? The NORD Rare Disease Database is an inclusive and comprehensive list of rare diseases based on information from established rare disease ontologies …

  2. Financial Assistance For Patients With Rare Diseases | NORD

    NORD’s Rare Caregiver Respite program was an absolute lifeline for our family this past year. With the respite program, I was able to select a family friend who I trusted, who was already adequately …

  3. Centers of Excellence - National Organization for Rare Disorders

    NORD is committed to breaking down silos and building bridges so that people living with a rare disease can achieve their best health and well-being. Our belief is that the NORD Rare Disease Centers of …

  4. About Us - National Organization for Rare Disorders

    NORD was the first national nonprofit to represent all individuals and families affected by rare disease. Today we’re the only organization working at the intersection of care, research, policy, and …

  5. Rare Diseases Support, Resources & Help | NORD

    Can NORD help find a medical expert for my rare disease? Many patient organizations provide lists of medical experts. Search NORD’s Organizational Database to find disease-specific patient advocacy …

  6. Rare Disease Research Grant Program | NORD

    Request for Proposals NORD’s Rare Disease Research Grants Program provides seed-money grants to qualified investigators for scientific and/or clinical research. The hope is that these studies ultimately …

  7. Mesenteric Panniculitis - Symptoms, Causes, Treatment | NORD

    Mar 4, 2024 · Learn about Mesenteric Panniculitis, including symptoms, causes, and treatments. If you or a loved one is affected by this condition, visit NORD to find

  8. Contact Us - National Organization for Rare Disorders

    Contact Us NORD is leading the fight to improve the lives of patients with rare diseases. For more information or to learn more, use the contact details below or sign up for email communications here. …

  9. Donate - National Organization for Rare Disorders

    A grant from your donor-advised fund helps NORD provide vital care and services to the rare disease community. Contact your fund manager or financial institution to recommend a gift to NORD (Tax ID: …

  10. About NORD Membership Network | NORD

    While some of these resources are free, the full range is only available to NORD network members. We offer 2 levels of membership: Platinum Level represents the highest level of integrity and …